How does it affect daily life?
Para los padres, cuidadores, proveedores de atención médica y profesores, a menudo surgen preocupaciones y preguntas sobre el cuidado y el bienestar de las personas con Marshall-Smith syndrome.
MSS affects almost all daily activities. For someone who has this condition themselves, but also for parents and other carers. A lot of help is needed with personal care, movement and communication.
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