How does it affect daily life?
For forældre, plejere, sundhedsplejersker og lærere opstår der ofte bekymringer og spørgsmål vedrørende pleje og velvære for personer med Marshall-Smith syndrome.
MSS affects almost all daily activities. For someone who has this condition themselves, but also for parents and other carers. A lot of help is needed with personal care, movement and communication.
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