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 For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Marshall-Smith syndrome. 

When a child lives at home...

Some children with MSS live at home, others in an adapted residential setting. This depends on the amount of care and supervision needed. But also on the parents' preference and how much care they can take on.

If a child does not live at home...

Children living in specialised institutions are also offered day care on site.

At a day centre for children with severe multiple disabilities (SMD), the group structure resembles that of regular primary school as much as possible. The division is in fact based on age. Of course, experts also look at a child's personal abilities when making the group allocation.


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Please take note that the Ask the Expert service is comprised of volunteer professionals in various areas of focus. Answers are not considered a medical, behavioral, or educational consultation. Ask the Expert is not a substitute for the care and attention your child’s personal physician, psychologist, educational consultant, or social worker can deliver.