What does it mean for you as a carer?
For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Marshall-Smith syndrome.
What problems can you face as a relative or carer of a person with the Marshall-Smith Syndrome?
Risk of overload
Many parents and immediate loved ones of a child with MSS feel they have to be strong. That they should not complain, let alone give up.
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