What does it mean for you as a carer?
Para pais, prestadores de cuidados, prestadores de cuidados de saúde e professores, surgem frequentemente preocupações e questões relativas aos cuidados e bem-estar dos indivíduos com Marshall-Smith syndrome.
What problems can you face as a relative or carer of a person with the Marshall-Smith Syndrome?
Risk of overload
Many parents and immediate loved ones of a child with MSS feel they have to be strong. That they should not complain, let alone give up.
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