What does it mean for you as a carer?
Per i genitori, gli assistenti, i fornitori di assistenza sanitaria e gli insegnanti, sorgono spesso preoccupazioni e domande riguardanti la cura e il benessere degli individui con Marshall-Smith syndrome.
What problems can you face as a relative or carer of a person with the Marshall-Smith Syndrome?
Risk of overload
Many parents and immediate loved ones of a child with MSS feel they have to be strong. That they should not complain, let alone give up.
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