What does it mean for you as a carer?
Les parents, les soignants, les prestataires de soins de santé et les enseignants ont souvent des préoccupations et des questions concernant les soins et le bien-être des personnes atteintes de Marshall-Smith syndrome.
What problems can you face as a relative or carer of a person with the Marshall-Smith Syndrome?
Risk of overload
Many parents and immediate loved ones of a child with MSS feel they have to be strong. That they should not complain, let alone give up.
xwiki:WaihonaPartners.amcMSS.WebHome
