Development, behavior and communication
Les parents, les soignants, les prestataires de soins de santé et les enseignants ont souvent des préoccupations et des questions concernant les soins et le bien-être des personnes atteintes de Pitt-Hopkins syndrome.
What are the most common development options for children and adults with PTHS? How can you determine these? In which ways can you stimulate them to a maximum?
How do you best support communication? Up to what age should you continue to provide speech therapy? Are there other ways to stimulate it?
What are the special behavioral characteristics?
How often does autism occur and how do you recognize it?
What do fears mean or being very excited? How do you deal with that?
What do the stereotypical movements mean (making the same movements again and again)? Can you accept them or do you have to try to break them?
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