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Behavior

 For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Pitt-Hopkins syndrome. 

What are the special behavioral characteristics? 

How often does autism occur and how do you recognize it? 

What do fears mean or being very excited? How do you deal with that? 

What do the stereotypical movements mean (making the same movements again and again)? Can you accept them or do you have to try to break them?

Recommendation(s)

Behavior

R40
R40
No specific medication is known to be generally effective in problematic behaviour of children or adults with PTHS, and prescribing practices as in the general population should be followed.
R36
R36
Special education strategies should focus on learning skills to enhance daily life skills and to modify anxious and/or self-injurious behaviours.

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Please take note that the Ask the Expert service is comprised of volunteer professionals in various areas of focus. Answers are not considered a medical, behavioral, or educational consultation. Ask the Expert is not a substitute for the care and attention your child’s personal physician, psychologist, educational consultant, or social worker can deliver.


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Sensory integration