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Care Planning


 Rodzice, opiekunowie, pracownicy służby zdrowia i nauczyciele często mają wątpliwości i pytania dotyczące opieki i dobrego samopoczucia osób z Pitt-Hopkins syndrome. 

Which items should receive attention in care planning? Much attention is now being paid to multidisciplinary care, to the transition of care from child to adult, and to sexuality.


Zalecenie(a)

Care Planning

R30
R30
Individuals with PTHS and their families require lifelong care, preferably provided by a multidisciplinary healthcare team.
R31
R31
Preparations for transition of care should start early, even already in puberty. Transition should include early and careful handing over of all information that is available on the child with PTHS, so both medical information and information on behaviour.

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Please take note that the Ask the Expert service is comprised of volunteer professionals in various areas of focus. Answers are not considered a medical, behavioral, or educational consultation. Ask the Expert is not a substitute for the care and attention your child’s personal physician, psychologist, educational consultant, or social worker can deliver.


                                                                                                                                                                                                                                                                                                                                                                                                                                                  

                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                          


  

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