Medical care adults
Les parents, les soignants, les prestataires de soins de santé et les enseignants ont souvent des préoccupations et des questions concernant les soins et le bien-être des personnes atteintes de Pitt-Hopkins syndrome.
Which physical problems should receive particular attention in adults with PTHS?
Recommandation(s)
Medical care adults
R26
- R26
- Special shoes or AFOs (ankle foot orthoses) should be looked at to improve the stability and mobility of those with PTHS.
R27
- R27
- When there is a change of behaviour in someone with PTHS it could be caused by pain and there should be careful physical exams for constipation, infections and dental problems.
R28
- R28
- Issues such as drooling, and chewing can be helped with the advice of a speech therapist
R29
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