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Medical care children

 For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Pitt-Hopkins syndrome. 

Which physical problems should receive particular attention in a growing child with PTHS?

Recommendation(s)

Medical care children

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Individuals with PTHS should undergo regular check-ups for their teeth.
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Vaccinations should be given to every child with PTHS according to national guidelines.
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Ultrasounds of heart and kidneys should be done only in children showing signs or symptoms that would fit an abnormality of the heart or kidneys are present.

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Please take note that the Ask the Expert service is comprised of volunteer professionals in various areas of focus. Answers are not considered a medical, behavioral, or educational consultation. Ask the Expert is not a substitute for the care and attention your child’s personal physician, psychologist, educational consultant, or social worker can deliver.


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