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Medical care adults

 For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Pitt-Hopkins syndrome. 

Which physical problems should receive particular attention in adults with PTHS?

Recommendation(s)

Medical care adults

R26
R26
Special shoes or AFOs (ankle foot orthoses) should be looked at to improve the stability and mobility of those with PTHS.
R27
R27
When there is a change of behaviour in someone with PTHS it could be caused by pain and there should be careful physical exams for constipation, infections and dental problems.
R28
R28
Issues such as drooling, and chewing can be helped with the advice of a speech therapist
R29
R29
Every male with PTHS should be checked to see that both testes have come down into the scrotum. If they haven’t, the treatment should be the same as in the general population.

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Please take note that the Ask the Expert service is comprised of volunteer professionals in various areas of focus. Answers are not considered a medical, behavioral, or educational consultation. Ask the Expert is not a substitute for the care and attention your child’s personal physician, psychologist, educational consultant, or social worker can deliver.


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