Medical care adults
Per i genitori, gli assistenti, i fornitori di assistenza sanitaria e gli insegnanti, sorgono spesso preoccupazioni e domande riguardanti la cura e il benessere degli individui con Pitt-Hopkins syndrome.
Which physical problems should receive particular attention in adults with PTHS?
Raccomandazione
Medical care adults
- R26
- Special shoes or AFOs (ankle foot orthoses) should be looked at to improve the stability and mobility of those with PTHS.
- R27
- When there is a change of behaviour in someone with PTHS it could be caused by pain and there should be careful physical exams for constipation, infections and dental problems.
- R28
- Issues such as drooling, and chewing can be helped with the advice of a speech therapist
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