WHAT
Supportive for you
Very little is known about the development and behavior of children, adolescents and adults with Malan syndrome. Parents / caretakers and other people involved are often searching to find out what they can expect in terms of development and behavior.
We would like to obtain and share this information with you. This information can be supportive for you in collaboration with (local) professionals to provide the best possible care.
We ask you to fill in seven questionnaires about various areas of development and behavior.
