Experience stories

Development, behavior and communication

For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Pitt-Hopkins syndrome.

What are the most common development options for children and adults with PTHS? How can you determine these? In which ways can you stimulate them to a maximum? 

How do you best support communication? Up to what age should you continue to provide speech therapy? Are there other ways to stimulate it?

What are the special behavioral characteristics? 

How often does autism occur and how do you recognize it? 

What do fears mean or being very excited? How do you deal with that? 

What do the stereotypical movements mean (making the same movements again and again)? Can you accept them or do you have to try to break them?

Nobody shared a story (yet) on Development, behavior and communication, please share your story on this topic!


                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                     

                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                   

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