Why should you sign up?
We are all involved with someone with una malattia rara (RD) for different reasons; we have it, we are parents, siblings, we are families or friends, we care for someone with RD, we are doctors, we are teachers, we are curious. ..
And because we are, we understand the importance of sharing our experiences and knowledge!
You too have something to share, maybe just to let you know you are 'involved' ... but by seeing (reading), talking (writing), learning and sharing again we will make life with RD more beautiful, that's our dream.
So join our community, it's free and commits you to nothing!
WaihonaPedia for families
Your Story
Tell us your story. Sharing stories helps families feel supported and creates a sense of community. Your story is important for all of us!
Discover
Discover a community of like-minded people and find support along your quest. Otherwise, start a community of your own - we'll help you. Either way, you are not alone!
Join
Become an active member of your community. Share, discuss, ask questions and contribute. Everyone knows something, together we know everything!
Support our work
With your one-time donation, you will contribute to the advocacy of persons with RTS. We are very grateful to you for this!
You can also opt for a donor membership of the Rubinstein-Taybi Syndrome Foundation. You will then receive the beautiful glossy EnzovooRTS twice a year and you are welcome to attend the information and family days of the RTS Foundation.
