Cooperation is our strength

WaihonaPedia offers a network of disease-specific communities.

By our slogan: everybody knows something; together we know everything, it is obvious that a community (Patient groups) is needed. Communities can bring valuable resources such as community managers, connections with specialists, and validated information. But where needed we can offer support through our experienced network to the community.

Better Information

By using the common resources developed and maintained on WaihonaPedia, your organization has access to more reliable information to share with your community of supporters. And access to our network of experts.

(Teaching the) Collaboration with experts

Professional experts agree on one thing when it comes to rare diseases: Fundamental expertise often lies in the experience-based knowledge of families and caretakers that has not (yet) been described in (official) guidelines proven by scientific research.

This means that there is a great need to ask questions to experts and that experts in this context can also be experienced family members or carers. Learn from each other and discover what we do not know!