Symptoms and/or characteristics
As WS is so rare, it is probable that the primary care clinicians usually responsible for coordinating the care of someone with the condition will have had little prior experience of the syndrome.
Because WS is a multisystem disorder, people with WS require various tests, screens, assessments, referrals and multidisciplinary interventions at different stages of their lives.
We aim to present these in a format that is accessible to anybody who is involved in the care of an individual with WS, including their parents.
As nossas publicações
