Why is diagnosis important?

When you know your child has MSS, you can prevent certain health problems by having your child checked for symptoms that often occur with MSS. When the diagnosis is clear, you can go to the MSS centre of expertise for tests and treatment. This is the AMC in Amsterdam. The care providers at the centre of expertise have experience with other patients with MSS, both children and adults. The doctors are also informed of the latest (international) information on MSS. At your request, they can pass on their knowledge to the healthcare providers in your neighbourhood. This way it is not necessary to go to Amsterdam for all treatments and advice.