Experience stories

Nature and behavior


Children and (young) adults with MSS are sociable. They enjoy interacting with people who are familiar to them. 

Many children with MSS enjoy movement games. Playing wildly is not always possible due to physical limitations (less strength in muscles, brittle bones and delayed development of normal movement). Tenacious behaviour is characteristic in children with MSS.

Inappropriate behaviour is rare. When a child does behave awkwardly, it may be due to a physical complaint. Pain and fatigue are often the first to be noticed in behaviour.

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