Expertise network
Welcome to the expertise network for Malan syndrome. Because Malan syndrome is a very complicated disorder, families around Malan syndrome have searched and found centre's of expertise together with the formally recognized expertise centre. This network can help your local doctors, day-care centre's, schools and therapeutists to deliver the right care, close to home.
Our information as basis
The experts within this Malan syndrome network work together to provide the best possible information about Malan syndrome on this website. They are also motivated to read your stories and answer your questions to learn more about Malan syndrome. This website is therefore a tool for healthcare provider, healthcare insurer and your family.
Malan syndrome is a congenital disorder named after the French geneticist Malan who described this for the first time. Characteristics of Malan syndrome are a typical face, tall stature, disturbed speech and a impaired cognition which varies in severity.
