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Hello $sender.first_name, let's get to know each other better...

Can you help us complete your registration by providing some additional information?

1 - Which community?

Participants participate within a community where you feel (or can start to feel) most at home

On this website, You can log on to:

Federatie WaihonaPedia

The named group(s) may contact me!

2 - Your motivation

Please tell us about your motivation for becoming a member.

On this website it is about the diagnosis:

Malan syndrome

I am family/carer of someone as the diagnosis indicates.

I am a supporter (Friend, Doctor, Teacher, Caregiver, Researcher, Other)

3 - How can we help, how can you help?

How can we help, how can you help?

I am open to connecting with others.

I have a question or offer my help/expertise.

4 - Finally

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I hereby consent to emails being sent to me in accordance with privacy laws.

The button above will become active if you have ticked at least one of the above options. Please take the time to answer these questions, we will always treat your information with the utmost care and discretion. As most of us are volunteers, it may take some time for us to approve your request, so please be patient.

About the website contents

All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at:

Send a email: wiki@waihonapedia.org