Respiration
Per i genitori, gli assistenti, i fornitori di assistenza sanitaria e gli insegnanti, sorgono spesso preoccupazioni e domande riguardanti la cura e il benessere degli individui con Pitt-Hopkins syndrome.
How do the respiratory problems come about? What are they? Do they remain or can they come and go? How much trouble does a child or adult experience? How harmful (or not) are they? Is there medication? Are problems with breathing during the day and at night always the same?
Raccomandazione
Respiration
- R11
- It should be explained to caregivers that spells of hyperbreathing, despite being disturbing to witnesses, are unlikely to be harmful.
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