Respiration
Les parents, les soignants, les prestataires de soins de santé et les enseignants ont souvent des préoccupations et des questions concernant les soins et le bien-être des personnes atteintes de Pitt-Hopkins syndrome.
How do the respiratory problems come about? What are they? Do they remain or can they come and go? How much trouble does a child or adult experience? How harmful (or not) are they? Is there medication? Are problems with breathing during the day and at night always the same?
Recommandation(s)
Respiration
- R11
- It should be explained to caregivers that spells of hyperbreathing, despite being disturbing to witnesses, are unlikely to be harmful.
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