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Collaboration helps....

Collaborating with other family communities offers shared knowledge, advocacy strength, pooled resources, and accelerated research progress. Together, these collaborations empower individuals, amplify voices, advance treatments, and raise awareness, ultimately driving positive change.

See our current partners below

$tileAside.imageLabel
Nederlands

Marshall Smith Syndrome Research Foundation

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Nederlands

Vereniging Cornelia de Lange syndroom

netherlandsbelgium
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Nederlands

Stichting Pitt Hopkins Syndroom

netherlands
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Nederlands

Nederlandse Vereniging Williams Beuren Syndroom

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Nederlands

Vereniging Angelman Syndroom Nederland

netherlandsbelgium
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Nederlands

Stichting Rubinstein-Taybi

netherlands
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Nederlands

Stichting Tubereuze Sclerosis Nederland

netherlands

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