Spotkania

Learn about your Pitt-Hopkins syndrome

Online, na tej stronie!
Stichting Pitt Hopkins Syndroom
1 wspierający

  

Nobody with rzadkie schorzenie is the same! It is important to understand how healthy you are and who you are! Our community provides questionnaires and scorecards that help you to discover how rzadkie schorzenie has impacted your life, how you develop.
When you discover which aspects of rzadkie schorzenie impact your life, we will provide links to fitting information to allow you to develop your personal health system. This saves you from digesting information you do not need directly, keeping your head free, to allow you to enjoy life and give you just that little bit of extra support.

Because if there is something typical for families with a care-intensive person having rzadkie schorzenie, is that you will see similarities with others having rzadkie schorzenie, but that you will also see where you are special. Finding your friend that really matches your lifestyle, has dealt with the same challenges can be improved by finding these people with rzadkie schorzenie that have approximately provided the same answers to our questionnaires and have similar scorecards.



Nasza wizja

SHARING and IMPROVING

We, as familymembers, can help to make a differce by sharing our experiences and knowledge.

    Każdy człowiek jest wyjątkowy!
    Wartość uśmiechu!
    Siła Miłości!

O zawartości strony

 

Wszystkie informacje zawarte na tej stronie służą wyłącznie celom edukacyjnym. Miejscem, w którym można uzyskać konkretne porady medyczne, diagnozy i leczenie jest lekarz. Korzystanie z tej strony odbywa się wyłącznie na własne ryzyko. Jeśli znajdziesz coś, co Twoim zdaniem wymaga korekty lub wyjaśnienia, proszę daj nam znać na: 

Wyślij e-mail: wiki@waihonapedia.org