Experience stories

Share your stories

Stories are written for and by people around Wiedemann-Steiner syndrome, so we know what we are talking about. We listen to all the stories, write them down and share them. And translate relevant news about Wiedemann-Steiner syndrome into readable articles. In this way we want to connect families, let them laugh and relax or give them just that little bit of support.

Because if there is something important for families with a care-intensive person like Wiedemann-Steiner syndrome, it is that the family remain upright. And that is what we, as community around Wiedemann-Steiner syndrome, are committed to doing with heart and soul.


Deepen your knowledge of Wiedemann-Steiner syndrome

We organize our stories about Wiedemann-Steiner syndrome in topics. You can browse our topics below. Below each topic you might find more detailed topics with stories that might be of interest to you.

We did not (yet) collect stories for Wiedemann-Steiner syndrome! Help by telling your story!

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