A new decease to be supported

Every community starts with the first person taking the initiative!

In WaihonaPedia starting a new community is by your registration (see top of this screen), as a patient or as a family member!

During your registration you will be asked to which disease you are connected, either as a patient yourself or as a family member?

If your disease is new our community managers will reach out to you to ask for 4-5 lines that describes your disease. Also we will ask you if and how you are linked to an existing community (national and international) to se if we can have their support.

That's it!

After you receive our 'ready' message you will be distributed a guide describing your next steps to gather your community.

About the website contents


All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: wiki@waihonapedia.org