Experience stories

Share your stories

Stories are written for and by people around Pierpont syndrome, so we know what we are talking about. We listen to all the stories, write them down and share them. And translate relevant news about Pierpont syndrome into readable articles. In this way we want to connect families, let them laugh and relax or give them just that little bit of support.

Because if there is something important for families with a care-intensive person like Pierpont syndrome, it is that the family remain upright. And that is what we, as community around Pierpont syndrome, are committed to doing with heart and soul.

Deepen your knowledge of Pierpont syndrome

We organize our stories about Pierpont syndrome in topics. You can browse our topics below. Below each topic you might find more detailed topics with stories that might be of interest to you.

{{warning}} We did not (yet) collect stories for Pierpont syndrome! Help by telling your story! {{/warning}}

About the website contents


All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

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