Our information is written for and by people around Pierpont syndrome, so we know what we are talking about. We search for information, rewrite them to be understandable and share them. And share relevant news about Pierpont syndrome by readable articles. In this way we want to inform families, make the feel empowered to educate the cure- and care-people or give them just that little bit of support.

Because if there is something important for families with a care-intensive person like Pierpont syndrome, it is that the family remain upright. And that is what we, as community around Pierpont syndrome, are committed to doing with heart and soul.

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All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

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