Selfstudy by Questionnaires and Scorecards
Nobody with Malan syndrome is the same! It is important to understand how healthy you are and who you are! Our community provides questionnaires and scorecards that help you to discover how Malan syndrome has impacted your life, how you develop.
When you discover which aspects of Malan syndrome impact your life, we will provide links to fitting information to allow you to develop your personal health system. This saves you from digesting information you do not need directly, keeping your head free, to allow you to enjoy life and give you just that little bit of extra support.
Because if there is something typical for families with a care-intensive person having Malan syndrome, is that you will see similarities with others having Malan syndrome, but that you will also see where you are special. Finding your friend that really matches your lifestyle, has dealt with the same challenges can be improved by finding these people with Malan syndrome that have approximately provided the same answers to our questionnaires and have similar scorecards.
Malan syndrome is a congenital disorder named after the French geneticist Malan who described this for the first time. Characteristics of Malan syndrome are a typical face, tall stature, disturbed speech and a impaired cognition which varies in severity.
