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Selfstudy by Questionnaires and Scorecards


Nobody with 3q29 microdeletion syndrome is the same! It is important to understand how healthy you are and who you are! Our community provides questionnaires and scorecards that help you to discover how 3q29 microdeletion syndrome has impacted your life, how you develop.
When you discover which aspects of 3q29 microdeletion syndrome impact your life, we will provide links to fitting information to allow you to develop your personal health system. This saves you from digesting information you do not need directly, keeping your head free, to allow you to enjoy life and give you just that little bit of extra support.

Because if there is something typical for families with a care-intensive person having 3q29 microdeletion syndrome, is that you will see similarities with others having 3q29 microdeletion syndrome, but that you will also see where you are special. Finding your friend that really matches your lifestyle, has dealt with the same challenges can be improved by finding these people with 3q29 microdeletion syndrome that have approximately provided the same answers to our questionnaires and have similar scorecards.

3q29 microdeletion syndrome is a rare chromosome disorder. Symptoms may include delay reaching some developmental milestones such as sitting, walking or talking, frequent ear and respiratory infections, and a small head size (microcephaly). Some babies with this condition are born with a cleft lip or cleft palate, and a few have been reported to have heart defects. As children with this condition get older, they may develop behavioral difficulties such as autism, and they may have symptoms of mental illness.[1] The severity of symptoms can vary, and some people with 3q29 microdeletion syndrome may have very mild symptoms or may not even know they are affected.[2] 


 

Deepen your knowledge of 3q29 microdeletion syndrome

We organize our data about 3q29 microdeletion syndrome in topics. You can browse our topics below. Below each topic you might find more detailed topics with data that might be of interest to you.


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