Site Map
The structure of this website and who is responsible for the content
Structure | Content | Who with what role is responsible for content | Where is it? |
---|---|---|---|
Home page | On the homepage we are welcoming you as visitor. This page is basically a collection of links to other area's of interest. Since it mostly structured as code it can only be changed by administrators | Gerritjan Koekkoek (Administrator) | Home page |
What is CdLS | This area contains a number of sub-area's. It will give the visitor general information about CdLS. | Ulla Mugler (World federation (Moderator) | What is CdLS? |
* Characteristics of CdLS | A overview of features by which CdLS can be recognized | Ulla Mugler (World federation (Moderator) | Characteristics of CdLS |
* Diagnosis of CdLS | How to diagnose CdLS and more around diagnosis | Ulla Mugler (World federation (Moderator) | Diagnosis of CdLS |
* Treatment Protocols | What are appropiate treatment protocols | Ulla Mugler (World federation (Moderator) | Treatment Protocols |
* How to move on? | Guidance for organizing your life with CdLS, get support, build your network | Ulla Mugler (World federation (Moderator) | How to move on? |
* Frequently Asked Questions]] | Much raised concerns/questions around CdLS | Ulla Mugler (World federation (Moderator) | Frequently Asked Questions |
* Information For Professionals | Content more suited for professionals in (health)care | Ulla Mugler (World federation (Moderator) | Information For Professionals |
* CdLS Research | Find research, conducted, in progress and planned | Ulla Mugler (World federation (Moderator) | CdLS Research |
Who we are? | Short structure of the World federation, it's mission and people. Also a link page to substructures | Ulla Mugler (World federation (Moderator) | Who we are? |
* The federation | Which member associations | Ulla Mugler (World federation (Moderator) | The federation |
* What we do? | Which activities are conducted by the federaton and it's members | Ulla Mugler (World federation (Moderator) | What we do? |
* get connected | How can you (be) connect(ed) to other people, supportgroups and start your personal CdLS network | Ulla Mugler (World federation (Moderator) | GetInvolved |
* about this site | This page plus a page with instructions to use this site, how does multi-language work... | Gerritjan Koekkoek (Administrator) | About this site |
News and stories | This is area is different for all members of the federation; most members do offer in some style this kind of information; the federation will offer mostly links to... but can also offer a structured area (like the NL group) | Ulla Mugler (World federation (Moderator) | News and Stories |
* Experience stories | Stories about experiences with person having CdLS | Ulla Mugler (World federation (Moderator) | Experience stories |
* contact others | Blogs about how to get involved, which activities are going on (like the world | Ulla Mugler (World federation (Moderator) | Contact others... |
* News | Latest news around the CdLS. | Ulla Mugler (World federation (Moderator) | New CdLS information |
Ask the Expert | In close collaboration with the 'same' USA service we collect questions and answers into the international database. These questions and answers will be translated by supportgroups delivering this database in multiple languages. Also different regional protocols are supported | Ulla Mugler/ SAC (World federation (Moderator) | Ask the Expert service |