Together for Rare


Ingrid Benoist

"The beauty of WaihonaPedia is that we can not only help ourselves, but also pass on our experiences to others who can benefit from them."

Linda Van de Wetering-Mak

"In Waihonapedia, the two worlds of parents and experts meet so that a wealth of useful information comes together and is shared."

Gerritjan Koekkoek

"When we share and store information with When we share and store information with each other It contributes enormously to the quality of life for the families."

Would you like to know more about the experiences of Ingrid, Linda or Gerritjan?

Then watch this film...

Or do you want to know how we can support you as a (patient) organisation? Mail gerritjan or call him: 06-57729439.

About the website contents


All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

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