Overview of expertise
Welcome to the expertise network for a rare condition. Because a rare condition is a very complicated disorder, families around a rare condition have searched and found centre's of expertise together with the formally recognized expertise centre. This network can help your local doctors, day-care centre's, schools and therapeutists to deliver the right care, close to home.
Our information as basis
The experts within this a rare condition network work together to provide the best possible information about a rare condition on this website. They are also motivated to read your stories and answer your questions to learn more about a rare condition. This website is therefore a tool for healthcare provider, healthcare insurer and your family.
