Kommunitetet

Stichting WaihonaPedia


We believe that the right knowledge about rare diseases increases the happiness and well-being of people with these diseases, their parents, their sisters and brothers, their families and their friends.
We do this by sharing essential and useful knowledge of parents and experts.
We use an online platform to make the right knowledge available. Knowledge workshops can also be organised on this platform.

mission

We will contribute to a better quality of life for families around a disease by helping communities to offer precisely that information to a family that will allow them to make the right decisions, to feel empowered with solutions and to get energy from support(ing) others with the same disease.

Begivenhedskalender    

Our approach

We offer a platform to which communities around a rare disease can connect. Through our platform communities will help each other by sharing best practises. Also many of the complications in the disease are present in other diseases as well. Through our smart platform you can easily use the information provided by another disease and give it the details of your own disease.We are a non-profilt organization and will always protect the interests of our communities. We do not sell or provide informations to any other organization as the ever growing list of connected communities.
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Vores frivillige og supportere

Voorzitter

Prof. dr. Rob Heethaar

Secretaris

Els van Overbruggen-Hartman

Director

Gerritjan Koekkoek

Penningmeester

willem Stolwijk

Opret forbindelse

Følg trin
Ellers skal du kontakte dit nationale ekspertisecenter
Vores vision


Vores kommunitet

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Send en e-mail: info@cdlsWorld.org