These questions and answers are collected for and by people with a rare condition (RD) and professional experts around RD.
In doing so, we believe to be a helpful resource for those affected by RD in their search for answers. Rare, but strong together!
All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at:
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